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All of Us Research Program web archive

Collected by: National Library of Medicine

Archived since: Sep, 2021

Description:

A selective collection of over 400 web resources archived by the National Library of Medicine beginning in 2021 related to the National Institutes of Health’s All of Us Research Program, a federally funded opportunity to advance the study of precision medicine and address the lack of diversity in biomedical research. Included in the archive are websites and social media of government and non-government organizations, journalists, scientists, and participants in the United States. Archived websites are primarily in English with a selection in Spanish. NLM will continue to develop, review, describe, and add content to the collection.

Subject:   Government - US Federal Science & Health Society & Culture Precision Medicine All of Us Research Program Biomedical Research Data Collection Datasets as Topic Data Science

Page 1 of 1 (29 Total Results)

Title: American Academy of HIV Medicine | American Academy of HIV Medicine Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine

URL: https://aahivm.org/2018/05/01/american-academy-of-hiv-medicine-joins-nih-in-launching-the-all-of-us-research-program-to-advance-precision-medicine/

Description: Press release, titled "01 May American Academy of HIV Medicine Joins NIH in Launching the All of Us Research Program to Advance Precision Medicine," detailing the launch of the All of Us program.

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Subject:   Participant Recruitment

Title: All of Us Tribal Leader and Urban Indian Organization Letter

URL: https://allofus.nih.gov/about/tribal-engagement/all-us-tribal-leader-and-urban-indian-organization-letter/

Description: Press release, titled "All of Us Tribal Leader and Urban Indian Organization Letter," detailing regional consultations held between the NIH and Tribal Nations as well as listening sessions. Resources for Tribal Nations are provided in preparation for the regional consultations.

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Subject:   Engagement

Title: All of Us Releases Initial COVID-19 Survey Data to Researchers | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events-and-media/announcements/all-us-releases-initial-covid-19-survey-data-researchers/

Description: Press release, titled "All of Us Releases Initial Covid-19 Survey Data to Researchers," detailing an update made to the program's research workbench that allowed researchers access to Covid-19 data as well as data provided by Fitbit technology.

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Subject:   COVID-19

Title: Statement on Data Security from the All of Us Research Program | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events-and-media/announcements/statement-data-security-all-us-research-program/

Description: Press release, titled "Statement on Data Security from the All of Us Research Program," detailing a security audit performed on the Research Program and the Program's response to the security audit.

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Subject:   Ethics and Data Management

Title: New Funding Opportunity: All of Us Research Program Seeks Engagement and Enrollment Partners

URL: https://allofus.nih.gov/news-events/announcements/new-funding-opportunity-all-us-research-program-seeks-engagement-and-enrollment-partners/

Description: Press release, titled "New Funding Opportunity: All of Us Research Program Seeks Engagement and Enrollment Partners," detailing a new funding opportunity and how organizations can apply to use funds for community, researcher, or tribal engagement. Links to full details and more information are provided.

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Subject:   Ethics and Data Management

Title: NIH funds genetic counseling resource ahead of million-person sequencing effort

URL: https://allofus.nih.gov/news-events/announcements/nih-funds-genetic-counseling-resource-ahead-million-person-sequencing-effort/

Description: Press release, titled "NIH funds genetic counseling resource ahead of million-person sequencing effort," detailing the All of Us Research Program's collaboration with Color, a health tech company, to provide genetic counseling for participants of the program.

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Subject:   General Sources

Title: How EHR Data, Survey Responses Can Mitigate Clinical Research Bias

URL: https://ehrintelligence.com/news/how-ehr-data-survey-responses-can-mitigate-clinical-research-bias/

Description: News article, titled "How EHR Data, Survey Responses Can Mitigate Clinical Research Bias," discussing the use of EHR, Electronic Health Records, in the All of Us Research Program and how these EHRs can have some discrepancies with a patient's full medical history due to varying factors.

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Subject:   Research Projects Using Collected Data

Title: Fitbit, Inc. - National Institutes of Health Launches Fitbit Project as First Digital Health Technology Initiative in Landmark All of Us Research Program

URL: https://investor.fitbit.com/press-releases/press-release-details/2019/National-Institutes-of-Health-Launches-Fitbit-Project-as-First-Digital-Health-Technology-Initiative-in-Landmark-All-of-Us-Research-Program/default.aspx

Description: Press release, titled "National Institutes of Health Launches Fitbit Project as First Digital Health Technology Initiative in Landmark All of Us Research Program," detailing the All of Us Research Program's intended plans to utilize Fitbits for gathering data from participants.

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Subject:   Ethics and Data Management

Title: Research Program: Precision Medicine, All of Us, and the LGBTQ+ Community

URL: https://lgbtbrooklyn.org/all-of-us-research-program/

Description: Press release, titled "Research Program: Precision Medicine, All of Us, and the LGBTQ+ Community," detailing the Brooklyn Community Pride Center's partnership with the All of Us Research Program, the program, and requesting the involvement of LGBTQ+ individuals.

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Subject:   Participant Recruitment

Title: Call for Artists: Traffic Box Community Connector

URL: https://montagemarketinggroup.com/wp-content/uploads/2020/11/Seattle.FINAL_.AoU_.Art-Call15081.pdf

Description: PDF, titled "Call for Artists: Traffic Box Community Connector," detailing the Traffic Box Community Connector project in Seattle and requesting artists to submit designs. An overview of the project, along with selection criteria, and submission requirements can be found in the PDF.

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Subject:   Participant Recruitment

Title: Call for Washington Artists: Seattle Traffic Box Community Connector | Region 5 Blog

URL: https://news.nnlm.gov/region_5/call-for-artists-seattle-traffic-box-community-connector/

Description: Press release, titled "Call for Washington Artists: Seattle Traffic Box Community Connector," asking for artists to submit designs for art to be displayed on traffic boxes. The release also details what the project entails and what the theme of the designs should be.

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Subject:   Participant Recruitment

Title: All of Us program launches cloud-based research platform | VUMC Reporter | Vanderbilt University

URL: https://news.vumc.org/2020/06/18/all-of-us-program-launches-cloud-based-research-platform/

Description: Press release, titled "All of Us program launches cloud-based research platform," that details the All of Us program's database and how it came to be.

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Subject:   Ethics and Data Management

Title: FACT SHEET: President Obama’s Precision Medicine Initiative

URL: https://obamawhitehouse.archives.gov/the-press-office/2015/01/30/fact-sheet-president-obama-s-precision-medicine-initiative/

Description: Press release, "FACT SHEET: President Obama’s Precision Medicine Initiative," detailing the initial announcement of the Precision Medicine Initiative that would morph into the All of Us Research Program. General information about the project is included.

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Subject:   General Sources

Title: Call to Action to Promote the All of Us Research Program | odr

URL: https://odr.dc.gov/AllOfUs

Description: Press release, titled "Call to Action to Promote All of Us Research Program to People with Disabilities," from the American Association on Health and Disability posted to the city of Washington D.C.'s website.

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Subject:   Participant Recruitment

Title: Rush Leads Seven Appropriation Letters Requesting Funding for Priorities Including Women’s Heart Health, Energy and Environmental Justice, and Solving Civil Rights–Era Cold Cases | Congressman Bobby L. Rush | Representing the 1st District of Illinois

URL: https://rush.house.gov/media-center/press-releases/rush-leads-seven-appropriation-letters-requesting-funding-priorities/

Description: Press release, titled "Rush Leads Seven Appropriation Letters Requesting Funding for Priorities Including Women’s Heart Health, Energy and Environmental Justice, and Solving Civil Rights–Era Cold Cases," announcing the various programs Senator Rush planned to back for the 2023 fiscal year, which included fully funding the All of Us Research Program.

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Subject:   Engagement

Title: Nashville residents underrepresented in medical research are offering up DNA samples despite their privacy concerns

URL: https://wpln.org/post/nashville-residents-underrepresented-in-medical-research-are-offering-up-dna-samples-despite-their-privacy-concerns/

Description: Press release, titled "Nashville residents underrepresented in medical research are offering up DNA samples despite their privacy concerns," detailing the involvement of underrepresented groups in Nashville and how some have joined the All of Us Research Program even though they have some concerns with the program. The Press release also mentions how individuals can have some or all of their data included in the program. The All of Us Research Program's bus tour is mentioned in the Press release, including the next stop of the tour after Nashville.

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Subject:   Public Response

Title: NIH award supports diverse researchers in All of US Research Program | BCM

URL: https://www.bcm.edu/news/nih-award-supports-diverse-researchers-in-all-of-us-research-program

Description: Press release, titled "NIH award supports diverse researchers in All of Us Research Program," that details Baylor College of Medicine's involvement and funding with NIH's All of Us Program.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Program — Blood Assurance

URL: https://www.bloodassurance.org/all-of-us-research-program/

Description: Press release, titled "All of Us Research Program Interest," that announces Blood Assurance's collaboration with the All of Us Research Program and how individuals donating blood through Blood Assurance can opt in to the All of Us Research Program during their next donation. An interest form is attached at the bottom of the page.

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Subject:   Participant Recruitment

Title: Partners HealthCare, Boston Medical Center Partner with NIH to Launch the All of Us Research Program

URL: https://www.brighamandwomens.org/about-bwh/newsroom/press-releases-detail?id=3012

Description: Press release, titled "Partners HealthCare, Boston Medical Center Partner with NIH to Launch the All of Us Research Program," relating Partners HealthCare and Boston Medical Center's involvement with the All of Us Research Program. Key highlights of the program are mentioned within the Press release as well as where individuals could find more information.

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Subject:   Engagement

Title: Intel and Google Cloud Team with All of Us Research Program

URL: https://www.intel.com/content/www/us/en/newsroom/news/all-us-research-program.html

Description: Press release, titled "Intel and Google Cloud Team with All of Us Research Program," announcing Intel's involvement with the All of Us Research Program by providing access to researchers nationwide. The Press release delves into what the All of Us Research Program is and how Intel is helping.

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Subject:   Ethics and Data Management

Title: NIDCD is working with All of Us Research Program to advance precision medicine | NIDCD

URL: https://www.nidcd.nih.gov/news/2022/nidcd-working-all-us-research-program-advance-precision-medicine/

Description: Press release, titled "NIDCD is working with All of Us Research Program to advance precision medicine," detailing the All of Us Research Program and The National Institute on Deafness and Other Communication Disorders (NIDCD) partnership with the program.

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Subject:   Research Projects Using Collected Data

Title: All of Us Research Program launches COVID-19 research initiatives | National Institutes of Health (NIH)

URL: https://www.nih.gov/news-events/news-releases/all-us-research-program-launches-covid-19-research-initiatives/

Description: Press release, titled "All of Us Research Program launches Covid-19 research initiatives" detailing the All of Us program's initiatives, including antibody testing, the COPE Survey, and the collection of electronic health records.

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Subject:   COVID-19

Title: NIH's All of Us Research Program Restarts Nationwide Journey Tour after Two-Year Pandemic Pause; Enrolling New Participants for Historic Biomedical Database in Kentucky (5/3-5/13)

URL: https://www.prnewswire.com/news-releases/nihs-all-of-us-research-program-restarts-nationwide-journey-tour-after-two-year-pandemic-pause-enrolling-new-participants-for-historic-biomedical-database-in-kentucky-53-513-301537308.html

Description: Press release, titled "NIH's All of Us Research Program Restarts Nationwide Journey Tour after Two-Year Pandemic Pause; Enrolling New Participants for Historic Biomedical Database in Kentucky (5/3-5/13)," detailing the All of Us Research Program's traveling exhibit's stop in Kentucky, which includes location and event info.

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Subject:   Participant Recruitment

Title: Through ‘All of Us’ program, Scripps Research launches wearable technology study to accelerate precision medicine

URL: https://www.scripps.edu/news-and-events/press-room/2021/20210224-aou-fitbit-study.html

Description: Press release, titled "Through ‘All of Us’ program, Scripps Research launches wearable technology study to accelerate precision medicine," detailing the use of Fitbit devices within the All of Us Research Program.

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Subject:   Ethics and Data Management

Title: National Institutes of Health’s ‘All of Us Journey’ comes to Transylvania from May 10-13 - Transylvania University - 1780

URL: https://www.transy.edu/1780/2022/05/national-institutes-of-healths-all-of-us-journey-comes-to-transylvania-from-may-10-13/

Description: Press release, titled "National Institutes of Health’s ‘All of Us Journey’ comes to Transylvania from May 10-13," detailing the All of Us Research Program's traveling exhibit's stop in Kentucky, information on the All of Us Research Program, and Transylvania University's history of medical education.

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Subject:   Participant Recruitment

Title: All of Us Research Program Releases Genomic Data to Researchers, Combined with Participant-Generated Data Collected on Vibrent Health’s Digital Health Research Platform - Vibrent

URL: https://www.vibrenthealth.com/all-of-us-research-program-releases-genomic-data-to-researchers-combined-with-participant-generated-data-collected-on-vibrent-healths-digital-health-research-platform%ef%bf%bc/

Description: Press release, titled "All of Us Research Program Releases Genomic Data to Researchers, Combined with Participant-Generated Data Collected on Vibrant Health’s Digital Health Research Platform," detailing past issues with genomic data collection, specifically in collecting within minorities. The Press release also details Vibrant Health's involvement with the All of Us Research Program, as well as giving some details on Vibrant Health.

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Subject:   Ethics and Data Management

Title: Vibrent Health creates participant advisory board to advocate for participant experience, diversity and accessibility, supporting NIH’s All of Us research program - Vibrent

URL: https://www.vibrenthealth.com/vibrent-health-creates-participant-advisory-board-to-advocate-for-participant-experience-diversity-and-accessibility-supporting-nihs-all-of-us-research-program/

Description: Press release, titled "Vibrant Health creates participant advisory board to advocate for participant experience, diversity and accessibility, supporting NIH’s All of Us research program," detailing the Participant Advisory Board in how it will help participants of the All of Us Research Program and who the member of the Participant Advisory Board are.

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Subject:   Ethics and Data Management

Title: Vibrent Health powers NIH precision nutrition research project to accelerate discoveries in food and dietary patterns - Vibrent

URL: https://www.vibrenthealth.com/vibrent-health-powers-nih-precision-nutrition-research-project-to-accelerate-discoveries-in-food-and-dietary-patterns-2/

Description: Press release, titled "Vibrant Health powers NIH precision nutrition research project to accelerate discoveries in food and dietary patterns," announcing Vibrant Health's involvement with the All of Us Program's dietary health component. This component of the All of Us program is meant to create precision nutrition for individuals. The Press release details how Vibrant Health's involvement will aid the All of Us Research Program with their data collection and engagement platform.

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Subject:   Research Projects Using Collected Data

Title: Vibrent Health to Launch Integrated Platform for Ancillary Studies in Large-Cohort Digital Health Research - Vibrent

URL: https://www.vibrenthealth.com/vibrent-health-to-launch-integrated-platform-for-ancillary-studies-in-large-cohort-digital-health-research/

Description: Press release, titled "Vibrant Health to Launch Integrated Platform for Ancillary Studies in Large-Cohort Digital Health Research," detailing Vibrant Health's database and its use in NIH's All of Us Research Program. The Press release also gives a brief introduction to the company.

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Subject:   Ethics and Data Management

Page 1 of 1 (29 Total Results)