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All of Us Research Program web archive

Collected by: National Library of Medicine

Archived since: Sep, 2021

Description:

A selective collection of over 400 web resources archived by the National Library of Medicine beginning in 2021 related to the National Institutes of Health’s All of Us Research Program, a federally funded opportunity to advance the study of precision medicine and address the lack of diversity in biomedical research. Included in the archive are websites and social media of government and non-government organizations, journalists, scientists, and participants in the United States. Archived websites are primarily in English with a selection in Spanish. NLM will continue to develop, review, describe, and add content to the collection.

Subject:   Government - US Federal Science & Health Society & Culture Precision Medicine All of Us Research Program Biomedical Research Data Collection Datasets as Topic Data Science

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Title: All of Us Research Program | National Institutes of Health (NIH)

URL: https://allofus.nih.gov/

Description: Website, titled "National Institute of Health All of Us Research Program," of the National Institute of Health's informational page on All of Us and their link to the main All of Us research page.

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Subject:   General Sources

Title: All of Us Research Program Overview

URL: https://allofus.nih.gov/about/program-overview

Description: Website, titled "All of Us Research Program Overview," detailing the All of Us Research Program at a glance and explaining what precision medicine is.

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Subject:   General Sources

Title: All of Us Research Program Tribal Consultation Final Report | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/all-us-research-program-tribal-consultation-final-report/

Description: Project report for the All of Us Research Program, titled "All of Us Research Program Tribal Consultation Final Report." The report details the All of Us Research Program's commitment to Tribal Nations and how the project has operated with Tribal Nations including how the project handles cultural sensitivity.

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Subject:   General Sources

Title: Biobank

URL: https://allofus.nih.gov/funding-and-program-partners/biobank/

Description: Webpage, titled "Biobank," hosted by the National Institutes of Health detailing what a biobank is and who provides the biobank for the All of Us Research Program.

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Subject:   General Sources

Title: Data and Research Center

URL: https://allofus.nih.gov/funding-and-program-partners/data-and-research-center/

Description: Webpage, titled "Data and Research Center," hosted by the National Institutes of Health detailing what the data and research center is and who hosts the data and research center for the All of Us Research Program.

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Subject:   General Sources

Title: Funding Opportunities

URL: https://allofus.nih.gov/funding-and-program-partners/funding-opportunities/

Description: Webpage, titled "Funding Opportunities," hosted by the National Institutes of Health that lists current and previous funding opportunities for researchers in the All of Us Research Program.

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Subject:   General Sources

Title: Genomics Partners

URL: https://allofus.nih.gov/funding-and-program-partners/genomics-partners/

Description: Webpage, titled "Genomics Partners," hosted by the National Institutes of Health detailing what the genome centers will accomplish in the All of Us Research Program and listing the organizations that act as the genomic partners for the program.

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Subject:   General Sources

Title: Health Care Provider Organizations

URL: https://allofus.nih.gov/funding-and-program-partners/health-care-provider-organizations/

Description: Webpage, titled "Health Care Provider Organizations," hosted by the National Institutes of Health detailing what the Health Care Provider Organizations are and listing ones associated with the All of Us Research Program.

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Subject:   General Sources

Title: Participant Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-center/

Description: Webpage, titled "Participant Center," hosted by the National Institutes of Health detailing what the Participant Center is and listing some of the locations.

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Subject:   General Sources

Title: Participant Technology Systems Center

URL: https://allofus.nih.gov/funding-and-program-partners/participant-technology-systems-center/

Description: Webpage, titled "Participant Technology Systems Center," hosted by the National Institutes of Health detailing what the Participant Technology Center is and what organizations host the center.

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Subject:   General Sources

Title: News and Events | National Institutes of Health (NIH) — All of Us

URL: https://allofus.nih.gov/news-events/

Description: The official NIH All of Us Research Program website for the program's "News and Events." The page hosts all of the program's announcements and lists events held. Videos, external news, testimonials, and the press kit are also available on this page.

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Subject:   General Sources

Title: NIH funds genetic counseling resource ahead of million-person sequencing effort

URL: https://allofus.nih.gov/news-events/announcements/nih-funds-genetic-counseling-resource-ahead-million-person-sequencing-effort/

Description: Press release, titled "NIH funds genetic counseling resource ahead of million-person sequencing effort," detailing the All of Us Research Program's collaboration with Color, a health tech company, to provide genetic counseling for participants of the program.

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Subject:   General Sources

Title: All of Us Awardees: Media Contacts

URL: https://allofus.nih.gov/news-events/press-kit/all-us-awardees-media-contacts/

Description: Webpage, titled "All of Us Awardees: Media Contacts," that lists organizations associated with the All of Us Research Program as well as contact information.

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Subject:   General Sources

Title: All of Us Research Program Backgrounder

URL: https://allofus.nih.gov/news-events/press-kit/all-us-research-program-backgrounder/

Description: Webpage, titled "All of Us Research Program Backgrounder," hosted by the National Institutes of Health answering many frequently asked questions about the All of Us Research Program as well as giving some background information on the initiative.

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Subject:   General Sources

Title: Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities

URL: https://allofus.nih.gov/news-events/voices-all-us/billy-caceres-benchmarks-health-disparities/

Description: Webpage, titled "Researcher Billy A. Caceres Taps All of Us’ Diverse Data to Benchmark Health Disparities," that includes an interview/overview of Billy A. Caceres, a researcher for the All of Us Program. The interview delves into Caceres' life story, his research, and how his experiences have affected his research.

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Subject:   General Sources

Title: Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler

URL: https://allofus.nih.gov/news-events/voices-all-us/building-bridges-better-health-joyce-ann-bell-winkler/

Description: Webpage, titled "Building Bridges to Better Health: South Carolina Participant Ambassador Joyce Ann Bell Winkler," that includes an interview/ overview of Joyce Ann Bell Winkler, a participant ambassador for the All of Us Research Program. The interview details Winkler's personal experiences, including her childhood, and her experience with the All of Us Research Program. Her testimony details what the program is like and why others should join the program.

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Subject:   General Sources

Title: Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark

URL: https://allofus.nih.gov/news-events/voices-all-us/connecting-social-environment-health-outcomes-to-pinpoint-disparities/

Description: Webpage, titled "Connecting Social Environment and Health Outcomes to Pinpoint Disparities: Harvard Medical School Researcher, Physician, and Parent Cheryl R. Clark," that includes an interview/ overview of Cheryl R. Clark, a researcher for the All of Us Research Program. The interview mentions Clark's personal experiences, her work with the All of Us Research Program, and how the two intersect.

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Subject:   General Sources

Title: Longtime Volunteers Believe Big Data Will Bring Better Health to All

URL: https://allofus.nih.gov/news-events/voices-all-us/longtime-volunteers-believe-big-data-will-bring-better-health-all/

Description: Webpage, titled "Longtime Volunteers Believe Big Data Will Bring Better Health to All," discussing Lin and Kean Engie's volunteer efforts as well as their support of the All of Us Research Program. The webpage highlights how everyone can benefit from joining the All of Us Research Program.

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Subject:   General Sources

Title: Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research

URL: https://allofus.nih.gov/news-events/voices-all-us/survival-resilience-power-mentorship-research/

Description: Webpage, titled "Atiya Shahid: A Story of Survival, Resilience, and the Power of Mentorship and Research," that includes an interview/overview of Atiya Shahid, a Minority Student Research Symposium Scholar. The interview mentions Shahid's life story, her research, and her experiences with the All of Us Research Program.

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Subject:   General Sources

Title: Thirst for Knowledge and Data Drives Army Veteran to All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/thirst-knowledge-and-data-drives-army-veteran-all-us/

Description: Webpage, titled "Thirst for Knowledge and Data Drives Army Veteran to All of Us," that includes an interview/ overview of Keisha Bellamy, a nurse for the All of Us Research Program and a veteran. The interview mentions Bellamy's life story, her experiences in the military, and her involvement in the All of Us research Program.

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Subject:   General Sources

Title: New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us

URL: https://allofus.nih.gov/news-events/voices-all-us/ysabel-abreu-perseverance-humanity/

Description: Webpage, titled "New York Participant Ysabel Abreu: A Profile in Perseverance and the Humanity in All of Us," that includes an interview/ overview of Ysabel Aberu, a member of the Participant Advisory Board. The interview details her life experiences that led to her involvement with the All of Us Research Program and why she is proud to be a part of the initiative.

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Subject:   General Sources

Title: Operational Protocol: The All of Us Research Program

URL: https://allofus.nih.gov/sites/default/files/aou_operational_protocol_v1.7_mar_2018.pdf

Description: PDF, titled "Operational Protocol: The All of Us Research Program," detailing the All of Us Research Program's background, rationale, objectives, overview, recruitment, enrollment, and program procedures. The documents also delves into possible issues, risks, and benefits of the program.

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Subject:   General Sources

Title: Homepage | All of Us

URL: https://allofus.nnlm.gov/

Description: Website, titled "All of Us Research Program," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This main page contains links to videos, newsletters, virtual health programs, and a place to apply for funding.

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Subject:   General Sources

Title: Team Scientist in Rockville, Maryland, United States

URL: https://careers.leidos.com/jobs/9727597-team-scientist/

Description: Website, titled "Leidos - Team Scientist," detailing a Team Scientist position in Rockville, Maryland. Qualifications, benefits, job description, and information about Leidos is provided on the page.

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Subject:   General Sources

Title: United Health Group - Medical Research Assistant – Reliant Medical Group

URL: https://careers.unitedhealthgroup.com/job/15518081/

Description: Website, titled "United Health Group - Medical Research Assistant – Reliant Medical Group," detailing a position for a Medical Research Assistant in Worcester, Massachusetts. Information on the position and the hiring company are provided on the page.

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Subject:   General Sources

Title: All of Us (initiative) - Wikipedia

URL: https://en.wikipedia.org/w/index.php?title=All_of_Us_(initiative)&oldid=1095657643/

Description: Wikipedia entry for the All of Us Research Program. The entry includes information on the program's core values, who can join, what data is collected, budget information, partner information, responses to the program, and the program's progress.

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Subject:   General Sources

Title: JHCHC Careers

URL: https://form.jotform.com/81974519096167/

Description: Website, titled "JHCHC Careers," detailing different career opportunities at Jackson Hinds Comprehensive Health Center, including the Deputy Principal Investigator position for the All of US Research Program. The site includes some brief information on the position as well as the education requirement.

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Subject:   General Sources

Title: Notice of Special Interest: Administrative Supplements to Advance Precision Medicine Using the All of Us Research Program’s Data

URL: https://grants.nih.gov/grants/guide/notice-files/NOT-PM-22-002.html

Description: Report, titled "Notice of Special Interest: Administrative Supplements to Advance Precision Medicine Using the All of Us Research Program’s Data," detailing the All of Us research program and different organizations involved with the project.

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Subject:   General Sources

Title: Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)

URL: https://grants.nih.gov/grants/guide/rfa-files/RFA-LM-21-002.html

Description: Website, titled "Network of the National Library of Medicine All of Us Program Center (U24) (Clinical Trial Optional)," hosted by the Department of Health and Human Services that details the funding available for the All of Us Research Program and how to apply for it.

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Subject:   General Sources

Title: Color - Genetic Counselor

URL: https://jobs.lever.co/color/58c168ae-bb2d-4bec-a0e9-a6c1eeee6a8c?ref=freshremote.work&utm_source=freshremote.work&utm_campaign=organic_re

Description: Website, titled "Color - Genetic Counselor," detailing a remote Genetic Counselor position for the All of Us Research Program. Information on the position, including benefits and how to apply, can be found on the page.

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Subject:   General Sources

Title: NIH All of Us Research Program Partnership

URL: https://nnlm.gov/workbook-allofus/

Description: Website, titled "NIH All of Us Research Program Partnership," that is designed to provide publicly available information about the partnership between NNLM and All of Us to assist in preparing the grant application for the Network of the National Library of Medicine (NNLM) All of Us Program Center (U24) cooperative agreement that posted on July 12, 202The NNLM All of Us National Program Center (NAPC) will serve as the coordinating center for the engagement, programs, partnerships, activities, and training offered by NNLM in support of the All of Us Research Program.

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Subject:   General Sources

Title: FACT SHEET: President Obama’s Precision Medicine Initiative

URL: https://obamawhitehouse.archives.gov/the-press-office/2015/01/30/fact-sheet-president-obama-s-precision-medicine-initiative/

Description: Press release, "FACT SHEET: President Obama’s Precision Medicine Initiative," detailing the initial announcement of the Precision Medicine Initiative that would morph into the All of Us Research Program. General information about the project is included.

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Subject:   General Sources

Title: Research Coordinator I at USC

URL: https://usccareers.usc.edu/job/los-angeles/research-coordinator-i/1209/29854102192/

Description: Website, titled "Careers at USC," detailing the position of Research Coordinator for the All of Us Research Program at the University of Southern California. Information on the position, benefits, and what it is like to work at USC are present on the site.

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Subject:   General Sources

Title: Work at Vanderbilt University Medical Center

URL: https://vanderbilt.taleo.net/careersection/.vu_cs/jobdetail.ftl?job=2204159&lang=en&sns_id=mailto

Description: Website, titled "Work at Vanderbilt University Medical Center," detailing a position for a Python Application Developer to work on creating a database and API for the All of Us Data and Research Center at Vanderbilt University.

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Subject:   General Sources

Title: FAQ: Minority Student Research Symposium

URL: https://vepimg.b8cdn.com/uploads/vjfnew/6735/content/files/1642585851msrs-faq-1-pdf1642585851.pdf

Description: PDF, titled "FAQ: Minority Student Research Symposium," answering nineteen questions about the Minority Student Research Symposium.

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Subject:   General Sources

Title: Public Library Association, National Network of Libraries of Medicine join in supporting the NIH’s All of Us Research Program

URL: https://www.ala.org/news/press-releases/2019/03/public-library-association-national-network-libraries-medicine-join/

Description: News Report, titled "Public Library Association, National Network of Libraries of Medicine join in supporting the NIH’s All of Us Research Program," announcing that the Public Library Association would be extending their partnership with the All of Us Research Program by supporting public libraries to increase health literacy, address health research inequities, and strengthen community partnerships with health advocates and providers.

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Subject:   General Sources

Title: Frontiers | Reaching for Precision Healthcare in Finland via Use of Genomic Data | Genetics

URL: https://www.frontiersin.org/articles/10.3389/fgene.2022.877891/full/

Description: News article, titled "Reaching for Precision Healthcare in Finland via Use of Genomic Data," discussing how Finland has utilized genomic data in some specialty areas, but is looking to expand their system to use genomic data more. This article references the All of Us Research Program briefly as an example of what other countries are doing in comparison to Finland.

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Subject:   General Sources

Title: Wondros Senior Design Researcher (Bilingual), NIH All of Us Research Program Job in Remote | Glassdoor

URL: https://www.glassdoor.com/job-listing/senior-design-researcher-qualitative-nih-all-of-us-research-program-wondros-JV_KO0,67_KE68,75.htm?jl=1007838129327

Description: Website, titled "Glassdoor -Senior Design Researcher (Bilingual), NIH All of Us Research Program," listing a remote position as a Senior Design Research for the All of Us Research Program. Information on the project, the position, and the company recruiting for the position is available on the page.

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Subject:   General Sources

Title: All of Us Research Program | Henry Ford Health | Henry Ford Health - Detroit, MI

URL: https://www.henryford.com/visitors/henry-ford-all-of-us/

Description: Website, titled "Henry Ford Health - All of Us Research Program," that relates information on the All of Us program and Henry Ford Health's involvement. Information provided includes locations, frequently asked questions, how to join, event information, and other news related to the program.

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Subject:   General Sources

Title: All of Us Research Program | Institute for Genomic Medicine

URL: https://www.igm.columbia.edu/research-and-labs/all-us-research-program/

Description: Website, titled "Columbia University Institute for Genomic Medicine All of Us Research Program," that details Columbia University Institute for Genomic Medicine's involvement with the All of Us Research Program, including the research team.

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Subject:   General Sources

Title: American Association on Health and Disability | Join All of Us

URL: https://www.joinallofus.org/aahd/

Description: Website, titled "American Association on Health and Disability," detailing the American Association on Health and Disability's partnership with the All of Us Research Program including testimonials, how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Asian Health Coalition | Join All of Us

URL: https://www.joinallofus.org/asian-health-coalition/

Description: Website, titled "Asian Health Coalition," detailing the Asian Health Coalition's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: California | Join All of Us

URL: https://www.joinallofus.org/california/

Description: Website, titled "All of Us California," detailing the All of Us Research Program in California, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: Champions | Join All of Us

URL: https://www.joinallofus.org/champions/

Description: Website, titled "Champions," listing the All of Us champions who support the mission and goals of the All of Us Research Program by sharing information on the program with their communities to help raise awareness.

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Subject:   General Sources

Title: Cherokee Health Systems | Join All of Us

URL: https://www.joinallofus.org/cherokee-health-systems/

Description: Website, titled "Cherokee Health Systems," detailing Cherokee Health Systems, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cherokee Health Systems.

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Subject:   General Sources

Title: Community Engagement Partners | Join All of Us

URL: https://www.joinallofus.org/community-engagement-partners/

Description: Website, titled "Community Engagement Partners," listing organizations that tell their communities what the All of Us Research Program is and how to join.

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Subject:   General Sources

Title: Community Health Center, Inc. | Join All of Us

URL: https://www.joinallofus.org/community-health-center-inc/

Description: Website, titled "Community Health Center, Inc.," detailing Community Health Center, Inc., their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Community Health Center, Inc.

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Subject:   General Sources

Title: Delta Research and Educational Foundation (DREF) | Join All of Us

URL: https://www.joinallofus.org/delta-research-and-educational-foundation-dref/

Description: Website, titled "Delta Research and Educational Foundation (DREF)," detailing the DREF's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Eau Claire Cooperative Health Center | Join All of Us

URL: https://www.joinallofus.org/eau-claire-cooperative-health-center/

Description: Website, titled "Cooperative Health," detailing Cooperative Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Cooperative Health.

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Subject:   General Sources

Title: All of Us Programa Cientifico

URL: https://www.joinallofus.org/es/

Description: Website, titled "All of Us Programa Cientifico," of the main All of Us organization which collects medical data from individuals to be used in the future for research. This is the Spanish version of the main page is where individuals sign up to join the program.

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Subject:   General Sources

Title: FiftyForward | Join All of Us

URL: https://www.joinallofus.org/fiftyforward/

Description: Website, titled "FiftyForward," detailing the FiftyForward's partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: Genomics and Your DNA Updates

URL: https://www.joinallofus.org/genomics-and-your-dna-updates/

Description: Webpage, titled "Genomics and Your DNA Updates," with links to articles from the All of Us Research Program about DNA and the All of Us results.

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Subject:   General Sources

Title: Gulf Coast Regional Blood Center

URL: https://www.joinallofus.org/gulfcoast-bloodcenter/

Description: Website, titled "Gulf Coast Regional Blood Center," detailing how the All of Us Research Program at the Gulf Coast Regional Blood Center operates along. The site also lists some of the center's partners in the All of Us Research Program.

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Subject:   General Sources

Title: Health Care Provider Organizations (HPOs) | Join All of Us

URL: https://www.joinallofus.org/health-care-provider-organizations/

Description: Website, titled "Health Care Provider Organizations (HPOs)," listing all of the Health Care Provider Organizations participating in the All of Us Research Program.

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Subject:   General Sources

Title: Illinois Precision Medicine Consortium | Join All of Us

URL: https://www.joinallofus.org/illinois-precision-medicine-consortium/

Description: Website, titled "Illinois Precision Medicine Consortium," detailing the Illinois Precision Medicine Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Illinois Precision Medicine Consortium.

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Subject:   General Sources

Title: Jackson-Hinds Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/jackson-hinds-comprehensive-health-center/

Description: Website, titled "Jackson-Hinds Comprehensive Health Center," detailing the Jackson-Hinds Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Jackson-Hinds Comprehensive Health Center.

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Subject:   General Sources

Title: LGBTQ+ | Join All of Us

URL: https://www.joinallofus.org/lgbt/

Description: Website, titled "All of Us LGBTQ+," detailing the All of Us Research Program and asking for members of the LGBT+ community to join the program. Some partners of the program are listed and a form for more information is also present.

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Subject:   General Sources

Title: National Alliance for Hispanic Health (Alliance) | Join All of Us

URL: https://www.joinallofus.org/national-alliance-for-hispanic-health-alliance/

Description: Website, titled "National Alliance for Hispanic Health (Alliance)," detailing the National Alliance for Hispanic Health (Alliance)'s partnership with the All of Us Research Program including how to join and frequently asked questions.

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Subject:   General Sources

Title: National Baptist Convention, USA, Inc.

URL: https://www.joinallofus.org/nbcusa/

Description: Website, titled "National Baptist Convention, USA, Inc.," detailing the National Baptist Convention, USA, Inc.'s partnership with the All of Us Research Program including how to join, location information, and frequently asked questions.

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Subject:   General Sources

Title: New England | Join All of Us

URL: https://www.joinallofus.org/new-england/

Description: Website, titled "All of Us New England," detailing the All of Us Research Program in New England, how to join, frequently asked questions, and location information.

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Subject:   General Sources

Title: New York City Consortium | Join All of Us

URL: https://www.joinallofus.org/new-york-city-consortium/

Description: Website, titled "New York City Consortium," detailing the New York City Consortium, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the New York City Consortium.

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Subject:   General Sources

Title: Newsletters | Join All of Us

URL: https://www.joinallofus.org/newsletters/

Description: Newsletters page from the official All of Us website that give updates to the project. Newsletters found on this site are organized by date of publication.

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Subject:   General Sources

Title: Pennsylvania | Join All of Us

URL: https://www.joinallofus.org/pennsylvania/

Description: Website, titled "All of Us Pennsylvania," detailing the All of Us Research Program in Pennsylvania, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: San Ysidro Health | Join All of Us

URL: https://www.joinallofus.org/san-ysidro-health/

Description: Website, titled "San Ysidro Health," detailing San Ysidro Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via San Ysidro Health.

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Subject:   General Sources

Title: Southeast | Join All of Us

URL: https://www.joinallofus.org/southeast/

Description: Website, titled "All of Us South East Enrollment Center," detailing the All of Us South East Enrollment Center that includes the University of Miami Miller School of Medicine, University of Florida College of Medicine, Emory University, and Morehouse School of Medicine which are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Southern | Join All of Us

URL: https://www.joinallofus.org/southern/

Description: Website, titled "Southern All of Us Network," detailing the Southern All of Us Network that includes health care systems in Alabama, Louisiana, and Mississippi that are participating in the All of Us Research Program. Information on how to join, locations, and frequently asked questions are found on the page.

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Subject:   General Sources

Title: Stanford University School of Medicine | Join All of Us

URL: https://www.joinallofus.org/stanford-university-school-of-medicine/

Description: Website, titled "Stanford University School of Medicine," detailing the Stanford University School of Medicine's partnership with the All of Us Research Program including how to join, frequently asked questions, and researcher resources.

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Subject:   General Sources

Title: Sun River Health | Join All of Us

URL: https://www.joinallofus.org/sun-river-health/

Description: Website, titled "Sun River Health," detailing Sun River Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via Sun River Health.

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Subject:   General Sources

Title: The Participant Center | Join All of Us

URL: https://www.joinallofus.org/the-participant-center/

Description: Website, titled "The Participant Center," listing partners that the All of Us Research Program works with if participants are not able to access the program through a health care provider in their area.

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Subject:   General Sources

Title: The University of Texas Health Science Center at Tyler | Join All of Us

URL: https://www.joinallofus.org/the-university-of-texas-health-science-center-at-tyler/

Description: Website, titled "The University of Texas at Tyler Health Science Center," detailing The University of Texas at Tyler Health Science Center, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via The University of Texas at Tyler Health Science Center.

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Subject:   General Sources

Title: Trans America Consortium | Join All of Us

URL: https://www.joinallofus.org/trans-america-consortium/

Description: Website, titled "Trans America Consortium," detailing the Trans American Consortium that includes health care systems in Idaho, Massachusetts, Michigan, Minnesota, North Dakota, Texas, and Wisconsin that are participating in the All of Us Research Program. Information on how to join and frequently asked questions are also located on the page.

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Subject:   General Sources

Title: University of Arizona and Banner Health | Join All of Us

URL: https://www.joinallofus.org/university-of-arizona-and-banner-health/

Description: Website, titled "University of Arizona and Banner Health," detailing University of Arizona and Banner Health, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via University of Arizona and Banner Health.

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Subject:   General Sources

Title: U.S. Department of Veterans Affairs

URL: https://www.joinallofus.org/va/

Description: Website, titled "U.S. Department of Veterans Affairs," detailing the U.S. Department of Veterans Affairs, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the U.S. Department of Veterans Affairs.

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Subject:   General Sources

Title: VCU Wright Center for Clinical and Translational Research | Join All of Us

URL: https://www.joinallofus.org/vcu-wright-center-for-clinical-and-translational-research/

Description: Website, titled "VCU Wright Center for Clinical and Translational Research," detailing the VCU Wright Center for Clinical and Translational Research, their involvement with the All of Us Research Program, frequently asked questions, and how to join the All of Us Research Program via the VCU Wright Center for Clinical and Translational Research.

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Subject:   General Sources

Title: Waianae Coast Comprehensive Health Center | Join All of Us

URL: https://www.joinallofus.org/waianae/

Description: Website, titled "Waianae Coast Comprehensive Health Center," detailing the Waianae Coast Comprehensive Health Center, their involvement with the All of Us Research Program, locations, frequently asked questions, and how to join the All of Us Research Program via the Waianae Coast Comprehensive Health Center.

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Subject:   General Sources

Title: What Participants Receive | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/

Description: Website, titled "What Participants Receive," describing what participants will learn from donating their data, including but not limited to information about ones DNA, monetary compensation, and other future benefits.

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Subject:   General Sources

Title: Hereditary Disease Risk | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/hereditary-disease-risk/

Description: Website, titled "Hereditary Disease Risk," listing all of the genes that the All of Us Research Program looks at to give results about risks for certain health conditions.

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Subject:   General Sources

Title: Medicine and Your DNA | Join All of Us

URL: https://www.joinallofus.org/what-participants-receive/medicine-and-your-dna/

Description: Website, titled "Medicine and Your DNA, "listing all of the genes that the All of Us Research Program looks at to give results about how DNA may affect how bodies processes medicine.

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Subject:   General Sources

Title: What Participants Share | Join All of Us

URL: https://www.joinallofus.org/what-participants-share/

Description: Website, titled "What Participants Share," detailing instructions on getting started with the All of Us Research Program, what the program requires from participants, and what they can expect to receive once their samples have been processed.

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Subject:   General Sources

Title: Who Can Join? | Join All of Us

URL: https://www.joinallofus.org/who-can-join/

Description: Website, titled "Who Can Join?" describing who can participate in the All of Us Research Program.

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Subject:   General Sources

Title: Wisconsin | Join All of Us

URL: https://www.joinallofus.org/wisconsin/

Description: Website, titled "All of Us Wisconsin," detailing the All of Us Research Program in Wisconsin, locations, frequently asked questions, and how to join the program.

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Subject:   General Sources

Title: Retention & Community Engagement Project Manager - All of Us Research Program - Job at Mass General Brigham in Cambridge, MA

URL: https://www.milwaukeejobs.com/job/detail/66642036/Retention-Community-Engagement-Project-Manager-All-of-Us-Research-Program/

Description: Website, titled "Milwaukee Jobs - Retention & Community Engagement Project Manager - All of Us Research Program," detailing a Retention & Community Engagement Project Manager position in Cambridge, Massachusetts. A general overview of the position, responsibilities, qualifications, and other important information about the job are provided.

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Subject:   General Sources

Title: NHMA: NIH All of Us

URL: https://www.nhmamd.org/nih-all-of-us

Description: Website, titled "NHMA: NIH All of Us," that links to the NHMA All of Us Research Program Loteria instructions, NHMA's fireside chats, NHMA All of Us branded materials, and basic information on the All of Us Research Program.

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Subject:   General Sources

Title: NIH announces national enrollment date for All of Us Research Program to advance precision medicine

URL: https://www.nih.gov/news-events/news-releases/nih-announces-national-enrollment-date-all-us-research-program-advance-precision-medicine/

Description: News Release, titled "NIH announces national enrollment date for All of Us Research Program to advance precision medicine," announcing the official enrollment date for the All of Us Research Program. The news release notes that prior to this national enrollment, there was a beta test to prepare for the program. Information on what the program includes, such as surveys, is mentioned throughout the news release.

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Subject:   General Sources

Title: NIH forms team of experts to chart course for the President’s Precision Medicine Initiative research network

URL: https://www.nih.gov/news-events/news-releases/nih-forms-team-experts-chart-course-presidents-precision-medicine-initiative-research-network/

Description: News release, titled "NIH forms team of experts to chart course for the President’s Precision Medicine Initiative research network," announcing the formation of the Working Group of the Advisory Committee to the NIH Director (ACD) and listing the individuals that comprise the team. Background information on the initiative is also present in the news release.

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Subject:   General Sources

Title: All of Us

URL: https://www.nnlm.gov/initiatives/all-of-us/

Description: Webpage, titled "All of Us," from the National Library of Medicine initiatives website. This page gives a brief overview of the All of Us Research Program and links to resources about the program.

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Subject:   General Sources

Title: Data Sources

URL: https://www.researchallofus.org/data-tools/data-sources/

Description: Website, titled "Data Sources," detailing the various ways the All of Us Research Program collects data, including electronic health records, bio samples and bioassays, surveys, physical measurements, and wearables.

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Subject:   General Sources

Title: Data Methods

URL: https://www.researchallofus.org/data-tools/methods/

Description: Website, titled "Data Methods," detailing the four different methodologies the All of Us Research Program uses to collect data. Links to other data protocols and methods are found at the bottom of the page.

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Subject:   General Sources

Title: Participant Surveys: The Basics

URL: https://www.researchallofus.org/data-tools/survey-explorer/

Description: Website, titled "Survey Explorer," that links out to seven All of Us surveys. These surveys include: The Basics, Lifestyle, Overall Health, Personal Medical History, Health Care Access & Utilization, Family Medical History, Covid-19 Participate Experience (COPE).

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Subject:   General Sources

Title: Participant Surveys: Family Medical History Survey

URL: https://www.researchallofus.org/data-tools/survey-explorer/family-medical-history-survey/

Description: Website, titled "Participant Surveys: Family Medical History Survey," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's family medical history.

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Subject:   General Sources

Title: Participant Surveys: Healthcare Access Utilization

URL: https://www.researchallofus.org/data-tools/survey-explorer/healthcare-access-utilization-survey/

Description: Website, titled "Participant Surveys: Healthcare Access Utilization ," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's healthcare decisions and how often they seek out healthcare professionals.

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Subject:   General Sources

Title: Participant Surveys: Lifestyle

URL: https://www.researchallofus.org/data-tools/survey-explorer/lifestyle-survey/

Description: Website, titled "Participant Surveys: Lifestyle," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's lifestyle including smoking habits and substance use.

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Subject:   General Sources

Title: Participant Surveys: Overall Health

URL: https://www.researchallofus.org/data-tools/survey-explorer/overall-health-survey/

Description: Website, titled "Participant Surveys: Overall Health," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's overall health and whether they view themselves as healthy individuals.

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Subject:   General Sources

Title: Participant Surveys: Personal Medical History

URL: https://www.researchallofus.org/data-tools/survey-explorer/personal-medical-history-survey/

Description: Website, titled "Participant Surveys: Personal Medical History," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's medical history.

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Subject:   General Sources

Title: Participant Surveys: The Basics

URL: https://www.researchallofus.org/data-tools/survey-explorer/the-basics-survey/

Description: Website, titled "Participant Surveys: The Basics," that hosts one of the surveys from the Survey Explorer that asks a multitude of questions based on a participant's basic information.

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Subject:   General Sources

Title: Frequently Asked Questions

URL: https://www.researchallofus.org/frequently-asked-questions/

Description: Website, titled "Frequently Asked Questions," answering frequently asked questions relating to the All of Us Program's Researcher FAQs, Survey Explorer, Data Browser, COVID-19, and Workbench.

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Subject:   General Sources

Title: Institutional Agreements

URL: https://www.researchallofus.org/institutional-agreements/

Description: Website, titled "Institutional Agreements," listing all of the institutions, and their contacts, that have an agreement with the All of Us Research Program and have access to varying levels of data.

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Subject:   General Sources

Title: Research Hub Updates

URL: https://www.researchallofus.org/research-hub-updates/

Description: Website, titled "Research Hub Updates," that links out to various newsletters and articles about the Research Hub, including the "Research Roundup."

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Subject:   General Sources

Title: All of Us Research Program Research Priorities Workshop

URL: https://www.researchallofus.org/wp-content/themes/research-hub-wordpress-theme/media/2019/02/March%202018%20Research%20Priorities%20Workshop%20_Meeting%20Summary_.pdf

Description: Session summary, titled "All of Us Research Program Research Priorities Workshop," that gives an overview of the discussions held at the workshop. An overview of the program, goals of the workshop, panels, and keynote presentations were recorded in the summaries.

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Subject:   General Sources

Title: NIH opens nationwide enrollment for huge precision medicine initiative

URL: https://www.statnews.com/2018/05/01/nih-precision-medicine-all-of-us-enrollment/

Description: Article, titled "NIH opens nationwide enrollment for huge precision medicine initiative," detailing the nationwide launch of the All of Us Research Program. The article discusses the beta run of the project and how some people may be apprehensive towards given their genetic data to a government program.

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Subject:   General Sources

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